Princess, The Tower

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“The young can and do have #ChronicPain. They can have #severepain, debilitating pain. Just because we are young doesn’t mean that we can’t be in immense amounts of pain.” 5 Things You Can't See About Living With Chronic Pain buff.ly/vM93igW #NERVEmber #invisibleillness

“Guilt is a common reaction to cancelling—but it’s important to remind yourself that it isn’t your fault. You are doing the best you can… Your #chronicillness isn’t a flaw or failure… Release yourself from any expectation of what you ‘should’ be doing.” buff.ly/4R793wX

”It’s painful to get dressed…It’s almost impossible to concentrate…It’s difficult to be present in conversations…It’s hard to enjoy anything that magnifies your pain. And you’re tired.” What I Wish Others Knew About Living With #ChronicPain buff.ly/2Pp6Eio #spoonie

“Often creation has to be broken up into tiny creative acts… Living with #chronicillness or #disability may mean that we have to juggle self-care and our #creativity—a difficult balancing act, because to many of us, #selfcare is our creativity.” buff.ly/su4fz1n #spoonie

“The feeling of being stuck between two worlds… The sick world and the ‘normal’ world. You are too sick to be normal, but…trying to be like everyone else when you are sick is a struggle and usually just makes you sicker.” buff.ly/2Ez6zFh #invisibleillness #chronicpain

“Healthy people don’t understand that #chronicillness and pain is not linear… the consequences don’t always match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” buff.ly/2NAyL12 #NERVEmber #chronicpain

“#ChronicIllness is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up… Now… I give myself compassion—I am doing my absolute best—and that is OK.” buff.ly/2yHONMo

“The cost of having a chronic illness can be enormous… This is exacerbated if the person with chronic illness is unable to work to cover these costs.” Guilt & #ChronicIllness: How to Deal (or Help Someone Dealing) with Guilt buff.ly/2XnnpgV @girlinhealing #ChronicPain

“As my body rages against itself, my brain becomes confused, tired and easily distracted… It’s hard to think of anything but pain and ways to relieve it.” The Levels of #Fibromyalgia #BrainFog buff.ly/2p9FfVv #chronicillness #chronicpain

“Sometimes symptoms of a #chronicillness such as #fatigue, nausea or #vertigo can be so severe that they quite literally are debilitating. But you can't see these things… It's invisible to you unless you are the one feeling it.” buff.ly/2DjHIVd #invisibleillness #spoonie

“People don’t understand the amount of energy that goes into preparing to leave the house… You have to calculate your every move to ensure you don’t overdo it. Even still, you could have an awful flare-up.” buff.ly/2JEis0g #NERVEmber #chronicpain #invisibleillness

“To live with #ChronicIllness is to live with a heightened sense of uncertainty. We do not know when our symptoms will flare, if and when our illness will worsen… Even from day to day, we do not know how we will feel.” buff.ly/SMhHEim #NERVEmber #ChronicPain

“I do not hide my illness, but I do hide how it has made me feel emotionally. I’ve cried a lot of tears behind closed doors. I keep the information I share basic because I do not want to be seen as an attention-seeker.” buff.ly/2FwBEtU #NERVEmber #chronicillness

“What I need you to know when I don’t reply is that I still love you. I still care even when I’m absent. I think of you often and wish I had the energy left at the end of the day to pick up the phone.” When I Don’t Reply buff.ly/3LhqiZl #CRPSAwarenessMonth #chronicillness

“Life as a #chronicallyill person can make you do things like push your limitations…because you desperately want to make the most out of those rare times when you aren’t lying in bed all day… [even if] it means needing two days to recover.” buff.ly/2UKFbOs #NERVEmber

“I'm not angry, either. I should be, but I'm not. I just feel pain. A lot of pain. I thought could imagine how much this would hurt, but I was wrong.” ~ Haruki Murakami #CRPSAwarenessMonth #NERVEmber #ChronicPain #RareDisease

“I’m astonished by the fact I look at my feet and there are no flames… Not only does touch hurt but so do other things… vibrations from music hurt… Mix that with the amplified effect even light touch has—it’s very hard.” buff.ly/0z5TwbB #CRPSAwarenessMonth #NERVEmber

“I have two major triggers for #flares. One is activity. If I do too much…I can count on a flare hitting within 48 hours. My second trigger…#stress. When I’m #stressed, flares hit much quicker and equally as hard as activity-related flares do.” buff.ly/44ja8Iv @AChVoice

“It’s really tough when other people don’t understand what you’re going through. It’s especially hard when it comes to loved ones… you’ve tried to explain… but they just don’t quite get it. This can feel really isolating and frustrating.” buff.ly/3NMKIO0 #ChronicIllness

“#ChronicPain can be so invasive that it splinters lives and causes cracks in our #MentalHealth… The stark contrast between how our lives used to be or could have been, compared to what they are now…can be incredibly hard to accept.” buff.ly/ULLKCM2 @InvisiblyMeBlog