Help4HD

Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.

As we process applications we just want say how thankful we are for our dedicated #sponsors that make these programs for the #HD/ #JHD community possible! Thank you for helping us provide holiday relief to families this November! #Help4theHolidays

Follow #Help4HD on Instagram for resources, events, and updates. #HDAwareness #TogetherWeAreStronger #Community linktr.ee/help4hdi

Trying this adaptive tech, the Beach Band! Tune in to our latest episode of #Help4HDLive as D.j. & Jessica talk with Katie about an open-door #HD community Thanksgiving, new traditions, & simple tips to empower independence. spreaker.com/episode/an-hd-t…

We are here to support HD families! Check out all the support groups that Help 4 HD has available! #Help4HD #HuntingtonsDisease #SupportGroup Find the right Support Group for you! help4hd.org/support-groups

Virtual HIPE successfully completed! Thank you community for participating in our #HD education event and a special thank you to our generous #sponsors that have supported our final HIPE of 2026! #Help4HDHIPE2026 #FacingtheUnknownwithHope #HuntingtonsDisease

REMINDER!!! Monday Mixer will NOT meet this week, but we hope to see you next week on November 16th at 4pm PST! Email Jamie@Help4HD.org for details.

#Help4theHolidays November program is now open for applications! #Help4HD is providing qualifying #HD/ #JHD families relief towards a #holiday meal. The program is on a first-come basis and will close in a few days. Details here: help4hd.org/events

Facing the Unknown with Hope~ HIPE Virtual November 2026 ~ Tune in for Special announcements, Q&A with HD Experts, #HDResearch updates, & more! LISTEN NOW! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease Tune in: facebook.com/share/v/1EmViWc…

LIVE ~ Facing the Unknown with Hope~ HIPE Virtual November 2026 Tune in for Special announcements, Q&A with HD Experts, #HDResearch updates, & more! LISTEN NOW! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease facebook.com/help4hd/videos/…

Help 4 HD HIPE Virtual is Tomorrow! Tune in and join us! us02web.zoom.us/j/8580554529… Passcode:320676 We are also streaming on YouTube: youtube.com/@help4hdtv Facebook: facebook.com/help4hd/

Virtual HIPE is TOMORROW! Tune in for these informative sessions with #HDExperts, #HDResearch updates, special announcements, & more! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease Link: us02web.zoom.us/j/8580554529… Passcode: 320676

These gene-positive gals respond to #EndofLife questions including arrangements for funeral, healthcare, & more on #Help4HDTV! #Help4HD End-of-Life Toolkit is designed for #HD Families to initiate important conversations! Listen NOW! facebook.com/help4hd/reels/

Resources for end-of-life planning are coming to #Help4HDTV! Listen as Leah & Jamie discuss this part of the #HD toolkit TOMORROW at 9am PST! #Help4HD #HuntingtonsDisease #endoflife facebook.com/help4hd/reels/

Exciting news for the #HD community: Skyhawk Therapeutics has dosed the first US participants in the global FALCON-HD study, evaluating SKY-0515 as a potential new treatment. Recruitment ongoing at 40+ sites worldwide! #HDResearch help4hd.org/post/skyhawk-the…

Sign up **WITH AN ADDRESS** to enter the drawing for giveaways on the app: digitalgrowthfirm.adalo.com/… On Saturday: Click session, Click giveaway at the bottom, Click the "Participate" button #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

THIS SATURDAY! 💙💜💙Don't miss these sessions designed with your questions in mind! Join this FREE #Virtual #HD education event ~ Tune in at 7:45am PST! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease Details: help4hd.org/events

Get your invite! Listen on #Help4HDLive for details on this "#HD Family Thanksgiving" with DJ, Jessica, & Katie! Tune in TOMORROW at 1pm PST! #HDCommunity #HDFamily #huntingtonsdisease spreaker.com/podcast/help-4-…

Dr. Kendra Anderson is joining the HIPE! These Q&As are brought to the community for #HD families to bring their authentic questions! Don't miss out this weekend! #Help4HDHIPE2026 #FacingtheUnknownwithHope Full Schedule: facebook.com/share/p/1FCXxkp…

Your package is on the way! Use 💜💙 #Help4HDSwag 💙💜 to share your unboxing with us!!! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease