@BreakthroughT1D Chief Global Advocacy Officer working to accelerate breakthroughs to cure, prevent and treat Type 1 Diabetes (T1D) and its complications
Washington, DC
Joined January 2014
- Tweets72
- Following290
- Followers105
- Likes3.6K
Lynn Starr retweeted
Katie Beth Hand took part in a Breakthrough T1D-funded clinical trial of an investigational immune therapy for type 1 diabetes tested with an islet transplant, and she’s been off insulin for over 200 days.
DA Gros, M.D., is the CEO of Eledon, the company that developed that investigational therapy, called tegoprubart.
Here, with Lynn Starr, Breakthrough T1D Chief Global Advocacy Officer, they meet face to face for the first time.
See an excerpt for their conversation about life post-islet transplant, the work behind the breakthroughs, and the pathway to therapies that will one day allow everyone to take off their pumps and CGMs for good and watch the full conversation here: bit.ly/3VPUqWK
Lynn Starr retweeted
Jim Lurie, whose parents, Carol and Erwin, were two founders of our organization over 50 years ago, kicks off the third and final day of the inaugural Breakthrough T1D Clinical and Research Congress.
Stay tuned for more news and updates as we wrap up an incredible weekend, back where it all began here in Philadelphia.
Lynn Starr retweeted
The T1D community has been clear: deceased donor islets (DDIs) must be accessible for those who qualify. Earlier this year, Breakthrough T1D went to work, submitting a proposal to the Department of Health and Human Services (HHS) and meeting with FDA and the Health Resources and Services Administration to urge a change. Today we’re seeing real, tangible movement.
HHS published a Request for Information on potential changes to the regulation of deceased donor islets—the first step toward a policy change.
In other words, they want to hear from you.
Read the RFI and submit your comments here. Look for the comment button on the top left of the page: regulations.gov/document/FDA…
Lynn Starr retweeted
The Food and Drug Administration is a critical partner in accelerating cures and therapies for type 1 diabetes. The nominee to run FDA knows first-hand how important that is. Dr. Heidi Overton, nominee to be the next FDA Commissioner, has shared with us that she lives with type 1 diabetes.
Lynn Starr retweeted
DDI reclassification is an important issue we can tackle to help some people with #T1D now. Happy to be working with Senator Lee on this proposed change. Watch this space for updates.
Lynn Starr retweeted
This week, Breakthrough T1D CEO Aaron J. Kowalski, Ph.D. traveled to Washington, D.C. to advocate for a well-resourced, stable, modern FDA that engages the T1D community to safely accelerate new treatments and cures. Take a look at some highlights from his time on Capitol Hill!
They heard from us, now let them hear from you. Sign up to be an advocate at Breakthrought1d.org/join
Lynn Starr retweeted
“As a pediatric endocrinologist having taking care of children, adolescents and young adults for several decades, it gives me great satisfaction to know that we can now address the root cause of the disease with Tzield administration upon diagnosis of stage 3 T1D when a patient requires insulin therapy, but still has cells producing insulin. Preserving insulin production by one's own beta cells has both near- and long-term benefits with this treatment that far outweighs any burden of T1D or risk of the therapy. I hope this is the first of many disease-modifying therapies that will bring us closer to cures for type 1 diabetes.” - Dr. Thomas Danne, Breakthrough T1D Chief Medical Officer
Today marks a historic milestone for the type 1 diabetes (T1D) community: the @US_FDA has approved Tzield for use in individuals ages 8–17 with stage 3 T1D. This is the first disease-modifying therapy ever approved for stage 3 T1D!
Tzield preserves beta cell function in newly diagnosed individuals, which has been shown to result in fewer hypoglycemic events, lower insulin use, reduced burden of care, and improved A1c. We'll keep working to ensure people with stage 3 T1D everywhere, not just in the U.S., have access to therapies that help them live healthier lives.
Breakthrough T1D and the T1D Fund have supported the development of this therapy for over 30 years, and we're grateful to the FDA for recognizing the urgent unmet need in T1D and expediting Tzield's approval through the accelerated approval pathway. We also thank @sanofi for their continued research and the T1D community for advocating for therapies that change the course of this disease. Read more here: breakthrought1d.org/news-and…
Historic day for the Type 1 Diabetes (#T1D) community! The @US_FDA has approved Tzield for ages 8-17 newly diagnosed with stage 3 T1D, the first ever disease modifying therapy for stage 3. @BreakthroughT1D has long supported this journey, and we’re so excited about this news! 💙
Today marks a historic milestone for the type 1 diabetes (T1D) community: the @US_FDA has approved Tzield for use in individuals ages 8–17 with stage 3 T1D. This is the first disease-modifying therapy ever approved for stage 3 T1D!
Tzield preserves beta cell function in newly diagnosed individuals, which has been shown to result in fewer hypoglycemic events, lower insulin use, reduced burden of care, and improved A1c. We'll keep working to ensure people with stage 3 T1D everywhere, not just in the U.S., have access to therapies that help them live healthier lives.
Breakthrough T1D and the T1D Fund have supported the development of this therapy for over 30 years, and we're grateful to the FDA for recognizing the urgent unmet need in T1D and expediting Tzield's approval through the accelerated approval pathway. We also thank @sanofi for their continued research and the T1D community for advocating for therapies that change the course of this disease. Read more here: breakthrought1d.org/news-and…
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Lynn Starr retweeted
We applaud @RepKimSchrier and @RepJohnJoyce and @SenatorShaheen and @SenatorCollins for introducing the Strengthening Collective Resources for Encouraging Education Needed (SCREEN) for Type 1 Diabetes (T1D) Act of 2026. The bipartisan legislation aims to increase awareness and improve early detection of T1D.
Screening and early detection of T1D can save lives, help people make important decisions about their health, and potentially change the course of this disease.
Too often, children and adults are diagnosed only after becoming critically ill. Screening for T1D can be done through a simple blood test, and ongoing monitoring can help families avoid medical emergencies and take action sooner.
Take action here: www2.breakthrought1d.org/sit…
Lynn Starr retweeted
See my new op-ed in @InsideSourcesDC on the "Rip & Replace" program. Everyone's worried about the Chinese spy balloon, but what about Chinese wireless network equipment? Congress rightly decided to pull it; now, it needs to fully fund the program!⤵️
dcjournal.com/worried-about-…
Lynn Starr retweeted
Chairwoman @cathymcmorris is exactly right. The rip & replace funding shortfall must be addressed ASAP. This is a bipartisan, national security, and consumer issue, and @ccamobile continues to urge full funding now. @HouseCommerce
Lynn Starr retweeted
FBI efforts to uncover Chinese espionage determined Huawei equipment in the US heartland could disrupt US nuclear arsenal communications cnn.it/3Pu44X1
If you’re not reading Brian’s tweets you’re missing something special. He has ALS and is truly one of the most inspiring and uplifting people out there.
Lynn Starr retweeted
We share our ALS journey—the hope, pain, laughter, love and tears—to make my generation of patients the last.
So tonight I have an ask:
Please share this video to let everyone know that ALS is fatal today but for the first time ever we can change that.
#ThankYou
Lynn Starr retweeted
A key benefit of #5G deployment is economic growth and job creation. Pleased to see the first U.S.-manufactured commercial base station has been delivered to a wireless carrier, and look forward to 5G continuing to boost American manufacturing. sdxcentral.com/articles/news…
Ericsson delivers first 5G radio made at our new US factory. Big day. Lots more to come
Innovation ➕ collaboration spurs progress and accelerates society. 🤝
They're the key factors behind our ability to hand-deliver a #5G radio unit to our friend Kyle Malady, CTO of @Verizon. Check it out! m.eric.sn/3aaf30r1h88 #Ericsson5GFactory
Lynn Starr retweeted
All of #TeamEricsson out there at the towers, on the front lines and behind the keyboards, you are all #EricssonEssential to communications! @EricssonNA @ericsson #5G #Secure #ICT #COVID19
Lynn Starr retweeted
We are excited for tomorrow! @ericsson's @jasonsboswell will be testifying at this hearing at 10am ET. Click below for details on a live stream:
TOMORROW at 10:00AM: The Commerce Committee will hold a hearing on 5G supply chain security. bit.ly/2I0ckN3
Lynn Starr retweeted
As demands for #5G grows, the demand for cellphone tower climbers booms. Learn more via @CBS @CBSThisMorning m.eric.sn/B4T350y64pz
