Cystic Fibrosis Trust (@cftrust) header
Cystic Fibrosis Trust (@cftrust) profile picture

Cystic Fibrosis Trust

@cftrust

We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.

 United Kingdom
cysticfibrosis.org.uk
Joined February 2009
  • Tweets32.9K
  • Following4.2K
  • Followers25.9K
5.3KMedia
Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)Photo by Cystic Fibrosis Trust (@cftrust)
It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any aspect of #cysticfibrosis, our friendly Helpline team are here for you. ☎️ Plus, you can now reach us via WhatsApp!
Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm. Email: helpline@cysticfibrosis.org.uk. Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053.

ALT Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm. Email: helpline@cysticfibrosis.org.uk. Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053.

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🔬 Did you know that since 2013 we’ve funded over 180 early career researchers, ensuring the brightest and best young scientists have the opportunity to work in CF research? ➡️🧵 #cysticfibrosis #earlycareerresearchers
Image from Cystic Fibrosis Trust (@cftrust)
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💻 This year we're launching a new webinar series for our early career researchers, giving them the opportunity to chat to more senior researchers about their careers and top tips for working in CF research. ➡️🧵
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In January's episode of #CForYourself we're talking all about staying active with cystic fibrosis. Lucy is joined by Matt, a personal trainer and running coach with CF, and physio Ruth, who is based at the Leeds Adult CF Centre. 🎧 Listen now wherever you get your podcasts.
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New for FeBrewary 2025 ☕ Go brew-free throughout FeBrewary and donate the money you would have spent on your fancy coffee. Sign up to fundraise this FeBrewary and download your own brew-free tracker – and so much more! Register today ➡ ow.ly/G1L950ULWav
Image from Cystic Fibrosis Trust (@cftrust)
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✨ Fundraiser Friday ✨ Thank you to Alix, who turned a vinyl mix-up into a fundraiser! After receiving 20 copies of @jamesblunt's Back to Bedlam vinyl by mistake, she sold them and has raised £240 so far! Huge thanks to Alix and everyone who supported her 💛
Image from Cystic Fibrosis Trust (@cftrust)
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Genetic therapies are a new type of treatment that are being developed for #cysticfibrosis. They work in a completely different way to current CFTR modulator medicines. Swipe to read three ways you can find out more about genetic therapies. ➡️ ow.ly/9iWl50UKXz7
A yellow logo with black text says 'Cystic Fibrosis Trust' sits at the top of the image. In the centre, there is dark blue text on a light blue background: Genetic therapies and cystic fibrosis. Three ways to find out more about what they are, whether they might benefit you, and the latest news on genetic therapy clinical trials. There is a white circle logo with blue text and a microscope that says 'Research Wednesdays' at the bottom.

ALT A yellow logo with black text says 'Cystic Fibrosis Trust' sits at the top of the image. In the centre, there is dark blue text on a light blue background: Genetic therapies and cystic fibrosis. Three ways to find out more about what they are, whether they might benefit you, and the latest news on genetic therapy clinical trials. There is a white circle logo with blue text and a microscope that says 'Research Wednesdays' at the bottom.

Search ‘genetic therapies resources’ on our website to view information, an FAQ, and a glossary explaining some of the jargon. Watch clips on our 'CF genetic therapies' playlist on YouTube – from expert explainers to comments from the CF community. Visit our Trials Tracker to check out the status of genetic therapy clinical trials in the UK – be sure to ‘filter’ the results for genetic therapies.

ALT Search ‘genetic therapies resources’ on our website to view information, an FAQ, and a glossary explaining some of the jargon. Watch clips on our 'CF genetic therapies' playlist on YouTube – from expert explainers to comments from the CF community. Visit our Trials Tracker to check out the status of genetic therapy clinical trials in the UK – be sure to ‘filter’ the results for genetic therapies.

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Sign up to host a FeBrewary tea party and get your exclusive fundraising pack 🫖 All of the money you raise during FeBrewary will help us to fund vital research, improve care, speak out and race towards effective treatments for all #cysticfibrosis ➡️ ow.ly/olbN50UK30m
Image from Cystic Fibrosis Trust (@cftrust)
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We would like to say a huge well done and thank you to Finlay for organising and hosting his music social night for a second year featuring bands Nova Music and Kathedral. The evening raised a whopping £529 for Cystic Fibrosis Trust. Thank you all for your continued support 💛
Image from Cystic Fibrosis Trust (@cftrust)
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Our Dedication Wall will continue to be there all year for anyone to share a thought, a picture, or a message for someone they are missing. Visit our Dedication Wall or get in touch with our In Memory Officer at susan.jackson@cysticfibrosis.org.uk ➡️ ow.ly/brZT50UHvTq
Image from Cystic Fibrosis Trust (@cftrust)
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Calling all researchers working in #AMR #lunginfections, you might be interested in this!
National Biofilms Innovation Centre (NBIC) (@ukbiofilms) profile pictureNational Biofilms Innovation Centre (NBIC)@ukbiofilms9 Jan 2025
📢 Registration for #Biofilms11 is now open! 🦠 Hosted by NBIC and @MicrobioSoc, #Biofilms 11 will take place in Cardiff from 13-15 May 2025 ⏰ Submit your abstract by 3 February 2025 Register now ➡️ biofilms.ac.uk/biofilms-11 #biofilm #microbiology #research #innovation
Image from National Biofilms Innovation Centre (NBIC) (@ukbiofilms)
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The Government is working on a 10-year plan for the NHS and we want to make sure the voices of people with CF are heard and included. Let us know your thoughts and ideas at our online workshop on 6 February, 6.30pm. Register now ➡️ ow.ly/F2Fa50UH0z2
Image from Cystic Fibrosis Trust (@cftrust)
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In this week’s #ResearchWednesday we find about a new study that has just begun to develop ways of looking at data on CF treatments in the UK CF Registry. Click the link to find out more. ➡️ ow.ly/YPea50UGJJ4
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FeBrewary is back and by holding your own tea party, you can help fund research to find better treatments that work for everyone with CF. 🫖 The printing company @Rocketgraphics got involved last year, inspired by Tim, raising an incredible £10,300. ➡️ ow.ly/ykrJ50UFUlM
Image from Cystic Fibrosis Trust (@cftrust)
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Support Cystic Fibrosis Trust and join in with this year's FeBrewary! ☕ Whether you host your own tea party or go brew-free, every drop of fundraising helps fund vital research. Sign up now to receive one of our limited edition pin badges! ➡ ow.ly/6l2t50UEcyb
Image from Cystic Fibrosis Trust (@cftrust)
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This year Bethany, who has cystic fibrosis, will be taking on her biggest challenge yet for #TeamCF: running 10 marathons in 10 weeks to raise money for Cystic Fibrosis Trust! Find out how you can join Bethany to make a difference in 2025 too! 💛 ➡️ ow.ly/zqfc50UBL9m
Image from Cystic Fibrosis Trust (@cftrust)
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Last chance to enter our fabulous Christmas raffle to win some brilliant cash prizes! ⭐ Without you and your support, we wouldn’t be able to do the work we do. 💛 Tickets cost just £1 each and are available until the end of Monday 6 January! ➡️ ow.ly/KcNK50Tv4Rh
Image from Cystic Fibrosis Trust (@cftrust)
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One of our Trustees, Sophie, was featured on Woman's Hour yesterday, talking about her upcoming team challenge rowing 3,200 miles across the Atlantic Ocean! A great listen, tune in from 45:35 - 55:40! bbc.co.uk/sounds/play/m00269…
Woman's Hour - Rape Crisis at 50, Extroverted kids/introverted parents, Atlantic Ocean rowers - BBC...

Woman's Hour - Rape Crisis at 50, Extroverted kids/introverted parents, Atlantic Ocean rowers - BBC...

We look back at 50 years of Rape Crisis with Dr Kate Cook and Lee Eggleston.

bbc.co.uk
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Don't forget to follow Sophie and her team's journey on Instagram and check out their GoFundMe to show your support! 🌊instagram.com/cruisingfree20… gofundme.com/f/team-cruising…
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Aaaand we're back! 👋🏻 Our helpline and social media has re-opened today, Thursday 2 January, and are available to chat about any of your questions or queries. If you have contacted us over the festive period we will get back to you as soon as possible.
Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm Email: helpline@cysticfibrosis.org.uk Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053

ALT Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm Email: helpline@cysticfibrosis.org.uk Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053

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New year, new challenge? ⭐ Join #TeamCF in 2025 and run, walk, swim or skydive to support our vital work towards a life unlimited for people living with cystic fibrosis. Head to our website to find the right event for you! ➡️ ow.ly/LI1Y50UtgXE
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It's not too late to enter our fabulous Christmas raffle for your chance to win some brilliant cash prizes! 🎄 Without you and your support, we wouldn’t be able to do the work we do. 💛 Tickets cost just £1 each. Buy yours online today! ➡️ ow.ly/KcNK50Tv4Rh
Image from Cystic Fibrosis Trust (@cftrust)
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