Jillybean

NZ BARRY'S LIFE - FIVE YEARS OF NEUROLOGICAL DECLINE AFTER PFIZER mRNA.... Today I received an update from Barry. The video below is a short clip from Barry's story on the docuseries The Tribute (link in comments below) This is Barry's email, received today, November 2026 Quote: FIVE YEARS OF NEUROLOGICAL DECLINE. WHERE IS THE FOLLOW-UP? 10 August 2021: I received my first Pfizer mRNA COVID-19 vaccination at Birkenhead Mall, Auckland. 16 September 2021: I received my second Pfizer vaccination at Shore City Mall, Takapuna. 17 September 2021: Just 24 hours after that second injection, my health changed dramatically. What followed was a devastating deterioration in my physical and neurological health. Severe fatigue, breathlessness, heart palpitations, persistent skin-crawling and itching sensations, and a progressively debilitating tremor in my left arm. The tremor subsequently spread to my left leg and head. I was initially diagnosed with chronic cardiomyopathy following hospitalisation in the cardiac ward at North Shore Hospital. Years later, a private cardiology investigation concluded that my condition was mild at worst, raising serious questions about the original diagnosis and whether it adequately explained my symptoms. THE NEUROLOGICAL NIGHTMARE I was subsequently diagnosed with Parkinson's disease and prescribed Sinemet (carbidopa/levodopa). As the dosage increased to three tablets daily, my mental health deteriorated catastrophically. I experienced severe depression, confusion, dissociation and ultimately a suicide attempt. The medication was discontinued. I have no memory of the event. I was subsequently prescribed Madopar (levodopa/benserazide) and Kemadrin (procyclidine). These medications have presented another nightmare. Nausea, disorientation, cognitive fog, blurred vision, anxiety and, at higher doses, worsening tremors. Too little medication and I shake uncontrollably. Too much and I struggle to function. 4 September 2026 — THE LEVODOPA (LD) CHALLENGE Under neurological supervision, I underwent a levodopa challenge to assess my response to Parkinson's medication. Within approximately 20 minutes, I experienced a severe adverse reaction. My entire body was shaking violently; I was in considerable pain, and I felt intensely nauseated. I remained fully conscious throughout. The entire episode was documented on video, with footage recorded before and after medication administration. The effects continued throughout the day, with residual symptoms the following day. And here is what I find extraordinarily difficult to comprehend. Despite the severity of that documented reaction, I have received little meaningful follow-up from neurology. No two days are the same, but every day is a nightmare that I am FORCED to endure. I have repeatedly raised concerns that my condition may not be straightforward idiopathic Parkinson's disease. I have specifically requested further investigation into autoimmune encephalitis or another neuroimmune disorder, including consideration of cerebrospinal fluid testing, appropriate antibody investigations, focused ultrasound MRI and EEG. Those investigations have not been undertaken, and I have been told they are not indicated. To compound matters, a leading Auckland immunologist declined to see me based on a review of existing blood-test results, without a face-to-face clinical assessment. I am not claiming that autoimmune encephalitis has been established. Nor am I claiming that vaccination has been conclusively proven to have caused my neurological condition. I am asking why these possibilities have not been adequately investigated, particularly given the abrupt onset of my symptoms, the subsequent deterioration and my severe reactions to prescribed medication. The timing of my illness is documented. My medication reactions are documented. My neurological deterioration is real. And the levodopa challenge was captured on camera. I have gone from being a physically active actor, personal trainer and working professional to being medically retired, struggling with daily activities and facing a future that has become increasingly difficult to contemplate. To say I feel utterly let down by New Zealand's public health system would be an understatement. I am not asking anyone to accept an unproven diagnosis or conclusion. I am asking for a thorough investigation, appropriate specialist attention and a willingness to examine possibilities beyond the diagnosis already on my medical record. When a patient has a severe neurological reaction under clinical supervision, captured on video, surely that warrants a meaningful explanation and follow-up. My specialist told me the only way I'm going to get a straight answer is to either go to Australia or America. How to say that the New Zealand health system is being gagged without saying the New Zealand health system is being gagged. Either way, I don't care; first, do know harm has long been abandoned. Four years after my symptoms began, I am still asking questions. Sincerely Barry Duffield (to watch Barry's full episode @TheTributeNZ see link in comments below)