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Step 5.5: The Biopterin Engine (Gear 5) - Neurotransmitter Synthesis and Vascular Tone We can't buy biopterin in a bottle, but by fueling our cellular machinery with real food and protecting our recycling loops, our body can build its own biological spark plugs. #POTS denutrients.substack.com/p/s…
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POTS and Clinical Endocannabinoid Deficiency #POTS #cannabinoids This post links Gear 4 and Gear 5 and reviews a variety of food and self-care strategies that may help inhibit the escalation of hyperinflammatory signaling that adds to vascular insufficiency. denutrients.substack.com/p/p…
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Replying to @aimee_hirayama
An incredible read, we agree. Right now feeling rather sombre at the thought of the youngsters this has come too late for and the families still caught up in misguided care of people with #MECFS and #POTS - both conditions are mentioned in the ruling.
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POTS — when standing sends your heart rate soaring — affects about 0.1–1% of people, mostly young women. A new JAMA review found about 70% report major limits on work or school, and the median wait for a diagnosis is 2 years. #POTS
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Thanks as always Tom - this article by @PollyPAuthor is such a great resource for therapists who are in a position to talk through and support clients with #MECFS and other illnesses like #POTS #EDS etc advocate for themselves in medical situations. We hope it will be useful.
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New in #CJC: Ivabradine + Pregnancy in #POTS. Medication continued from preconception through delivery with reassuring fetal surveillance and a healthy term baby - a small but meaningful data point for shared decision-making 💪👶 ⬇️ onlinecjc.ca/article/S0828-2… #OpenAccess #CardioOb #Autonomic #CaseReport
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Does POTS get better over time? For most people, yes, but slowly. In one study, 37% of adults no longer met POTS criteria after a year. Of teens followed about 5 years, 86% improved and 19% fully recovered. Track the trend, not the day. autonomic.care/insights/pots… #POTS
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Replying to @ThePOTSPostman
Epstein bar virus was activated during my Covid infection. It believe to have caused my #POTS.
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Excited to present some of our work at #AAS2026 today! I’ll present three posters: one about SCA4, another about cases of recurrent #syncope, and the last but not least about #POTS and chronic OI. I would love chat about these in person or online if you have any questions!
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From all of us with zebra diseases… (#EDS, #POTS, #MCAS) your willingness @nytimes @NYTimesPR to share our voices and experiences is invaluable. As a Nurse, I’ve been banging this drum my whole life. Seeing National attention warms my soul :) The medical community WILL hear us!
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Mein Sohn hat offenbar Angst vor dem Stehen 🤡🤡🤡 Schweres Posturales Orthostatisches Tachykardie Syndrom. Danach PEM für 3 Tage, ausgelöst durch Stehtest (10 min stehen). #MECFS #POTS #LongCovid
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My formerly healthy 30 year old mate got two #Pfizer jabs to “travel” but the only places he went were the hospital, to get thousands of dollars in blood tests, and a variety of doctors’ offices. He is 6’5” so when he falls he falls FAR. Finally diagnosed with #POTS.
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BOYS WE LOST 8 LBS SINCE CHANGING MY DIET A LITTLE AND MOVING AROUND MORE LETS GOOOOO #POTS #Pots #ChronicPain
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the movie turning red except it’s about me every time my stupid chronic illness body goes outside #pots
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Does weed make POTS worse? THC raises heart rate (~8 bpm), drops HRV, and cannabinoids are linked to more orthostatic hypotension. CBD lowers BP too. No POTS trials. Track your own trade-off: autonomic.care/insights/pots… #POTS
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Replying to @_InfoGram_
I doubt that's true but how I wish it was. Reporters have been super lazy, incompetent & downright atrocious in not calling #pots to heel/account
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